This Little Diamond of a boy is facing a battle that no youngster should have to, yet even with all the problems Corey has to put up with he is such a happy little soul full of life just like any youngster.
The Christmas party was a fund rising event to help with the costs of looking after Corey the turn out was amazing and the people were very generous.
Please read the text below which I have copied from a face book page
and then watch the two Videos which cover the entertainment that was provided free by the artists.
Namely JAMES Dixon, MARK Wilson, both fantastic guitarists and singers along with two other artists singer Ezmay Grace Jopling, and opera singer Elizabeth Hobbs all the artists were out of this world Ezmay,s cover of amazing grace was the best I have heard, look out for James Dixon playing a six string cigar box guitar made by Jeff at Dirtbox guitars here in bude.
Dirtbox guitars and sea breeze blues guitars both donated a hand made cigar box guitar to help rise funds.
I Must say a big thank you to Oceans Community Church for hosting the event and the use of the hall and the wonderful sound and lighting system.
Brief Story,
Born two months early, Corey from day one
has attended over 300 day appointments and spent 6 months as an
inpatient between Bristol Children’s hospital and North Devon District
Hospital, in his almost 4 years of life. He battles everyday with;
intractable polymorphic epilepsy, hydrocephalus, myelinated fibres in
his eyes leaving him with poor eyesight, very poor hearing, fragile
veins in the brain so he’s prone to bleeds. And has two genetic
disorders 16p13.3 duplication syndrome and Kabuki syndrome.
With
all these problems he is an amazing little boy and some of the team of
Corey’s Crusaders are taking on the Tsunami Trail marathon. Known as one
of the toughest marathons in the UK the 36mile route follows the cliff
path from Westward Ho, Devon too Bude’s Castle Grounds in Cornwall.
There will also be some Crusaders running 26miles from Clovelly, Devon
and 16miles from Hartland, Devon both finishing in the Castle Grounds,
Bude.
The event will take place
on Saturday 9th July 2018 and hopefully the runners will be crossing the
finish line in the Castle Grounds, Bude between 4-7pm, hopefully in one
piece and before 7pm.
Photo
 |
| Corey and his dad with James Dixon on stage in the foreground |
Corey,s Christmas Party Part 1
Corey,s Christmas Party Part 2
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